Easterseals celebrates 100 years at Fiesta Parade Floats

Actor Nic Novicki led a cheer—actually, several of them—to celebrate Easterseals 100th anniversary and the Rose Parade float at Fiesta Parade Floats.

 

by Laura Berthold Monteros

Easterseals has aided people with disabilities for a full century and is the largest disabilities service provider in the United States. To celebrate and honor this anniversary, the organzation is sending its first-ever entry, a giant flowered birthday cake down the Rose Parade route in Pasadena, Calif. on Jan. 1, 2019,. Last Saturday, Easterseals Southern California (ESSC) threw a party at Fiesta Parade Floats and invited Tournament of Roses Royalty to attend. Photos are below.

Nancy Weintraub, chief development officer for ESSC, said, “If there was ever a time to do one, this is now.” The 100th is a big party, and “it deserves a parade.”

Board member Mary Platt told us “For years [we talked about] how to get our name out among a broader group of people.” The float was a dream of hers and others. “All of a sudden, this became a reality.”

The “all of a sudden” took 18 months to two years to get through the process of committee work, coordinating with the headquarters in Chicago, and going through design and building. The festive float, “Celebrating Easterseals: 100 Years of Disability Services,” was designed by Charles Meier with  a 20-foot high cake, party horns, and presents.

Easterseals serves 1.5 million people with disabilities across the country every year. ESSC is the largest autism service in California, with 8,500 families. One of the goals of Easterseals is to build a more inclusive future for the 61 million Americans with diverse disabilities. There are services for adults, children, veterans, seniors, and caregivers. Services include day services, therapy, peer-to-peer groups which help with social interaction, camp, and assistance in finding housing and employment.

There were a couple celebrities making the rounds at the party: actress Jamie Brewer, who has been a recurring actress in 20 episodes of American Horror Story, and Nic Novicki, who has 45 acting credits on IMDB and a couple dozen credits in writing, producing, and directing. He had a recurring role on Boardwalk Empire, and as Tyrion Lannister in the spoof School of Thrones. Both were irrepresible in their excitement over the Easterseals float and the work the nonprofit does.

Novicki is an ESSC board member and Founder/Director Easterseals Disability Film Challenge. The short videos have people with disabilities on or behind the camera, and can be serious or funny. Some can be viewed at the link above, along with information on how to enter the sixth challenge in 2019.

Brewer has worked in theater since she went to a summer program in 8th grade, for which she got college credit. She learned stagecraft, acting, and valuable skills for her career. In addition to American Horror Story, a new movie, Turnover, is in post production.

“An older man takes a new direction in life,” she explained. “He hires individuals who have different backgrounds, different abilities. Two special communities are represented: the Down Syndrome community and the deaf community.”

We asked if she sees herself as a role model and groundbreaker. She replied enthusiastically, “I am! I do break barriers! I’m the first woman with Down Syndrome to walk in a New York Fashion Week.”

When it was time to cut the real cake sitting in front of the float, President & CEO Mark Whitley underscored the “effort of inclusion” Easterseals promotes. “What better way to celebrate 100 years, than a float in the Rose Parade.”

Mary  Platt stood with her son Michael, who is autistic, as she spoke. “The question is always, ‘What do you do?’” She said that the float will show some 80 million viewers all over the world what Easterseals does.

One of the most affecting speakers was Howard McBroom, Advocate for Easterseals. He worked himself into a job after some time of speaking with legislators and politicians as a volunteer. He was so effective in Sacramento, that Easterseals gave him a full-time job.

“Only one in five people with disabilities have affordable housing. The other four do not,” he stated. He says this is a “national disgrace.” When he meets with legislators who express sympathy, he tells them, “Compassion does not pay the bills.”

The young women on the Royal Court also spoke. Princess Helen Rossi, who has juvenile arthritis, said, “This event is special to me, because (for my Girl Scout Gold Award), I wrote a storybook for kids with disabilities.”

Queen Louise directly addressed the need for diversity. “I learned about Easterseals’ effort to destigmatize disability….Years ago, the Court was all white women,” she said, adding that the Tournament of Roses will continue to diversify.

“Celebrating Easterseals: 100 Years of Disability Services” will have 12 riders, spinning pinwheels, 3,000 hot pink roses, a coconut flake-covered cake, and lots and lots of marigolds. The flower is associated with Easterseals, and will be represented with fresh petals and stylized sculptures. McBroom will ride the float, with Easterseals Program Director Bryan Nguyen, who is a peer-to-peer counselor.

Kim Cohn, Vice President Marketing Communications for ESSC, explained how the riders were chosen. Each one of the 71 Easterseals affiliates were given the opportunity to nominate a rider, and 20 or 30 did.

“The committee looked for great, inspiring Easterseals stories, and those were chosen to ride the float,” she said.

Nine of the riders are Easterseals clients and three are accompanying riders. They are Kaison Shipp-Collier, 12, Easterseals Nevada (autism); Sophia Stafford, 17, Easterseals Southeastern Pennsylvania (Williams Syndrome), accompanied by sister Sabrina Stafford, Easterseals music therapist; Reagan Crabtree, 20, Easterseals Iowa (apraxia, autism); Blake Scribner, 21, Easterseals Central Illinois (brachial plexis injury), accompanied by Katie Pena, therapist; Matthew Jameson, 21, Easterseals Massachusetts (spastic diplegic cerebral palsy); Lora Glassman, 32, Easterseals Southern California (brain condition); Ernesto Gutierrez, 43, Easterseals Southern California (injury from an IED attack); Howard McBroom, 60, Easterseals Southern California (autism), accompanied by Brian Nguyen, Easterseals Program Director; danny Blake, 68, Easterseals Blake Foundation (cerebral palsy)

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All photos copyright Laura Berthold Monteros. Contact administrator for permissions.